Columnist Connie Chandler encourages patients and caregivers to share their positive stories with their doctors.

A higher-dose regimen of nusinersen may provide further benefits to people with SMA relative to the approved regimen, its ...

A new ASAH1 mutation linked to SMA with progressive myoclonic epilepsy was found in a young boy, offering insights for ...

Guest writer Robin Collins, who's approaching 70, has adjusted to losses and survivor's guilt while finding solace in ...

Columnist Helen Baldwin says she's come to appreciate the people she's met in the community years after her son's SMA ...

Robin Collins is a self-described “little old lady.” She’s 4 feet tall in her wheelchair and unexpectedly hurtling toward age ...

Richard Kravitz, MD, shares why self-advocacy matters in healthcare and how to ask questions with confidence, clarity, and compassion.

Learn how SMA affects liver health, key risk factors, symptoms, and practical tips to manage and prevent liver complications in SMA patients.

For columnist Connie Chandler, finding a community filled with love, admiration, and support has made all the difference in life with SMA.