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My Life Changing Diagnosis #EDS #EhlersdanlosSyndrome #Science
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🌟Comment “EDS” for my how to get diagnosed guide! 🔆Comment “veins” for research on vascular compression ❤️🩹 🤯My specialist told me I have severe Ehlers Danlos syndrome (EDS)… and honestly, that was a shock. I didn’t think I was that bad. I know others that seem to have it worse than me. But So many complications since breast cancer treatment point to this diagnosis — 👉🏻Hernias. 👉🏻Surgery complications 👉🏻The chronic brain fog, fatigue, tinnitus, headaches 👉🏻Now vascular compression i
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For years I was told it was all in my head. The bruises, the dislocations, the exhaustion — all brushed off. Until one day, I heard the words Ehlers-Danlos Syndrome. This short video shares my real journey of pain, strength, and finding hope. If you live with EDS, POTS, MCAS, or chronic pain, know that you’re not alone. 💜 👇 Share your story in the comments — let’s raise awareness together. | Ehlers Danlos Syndrome Support
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Nausea might seem like just motion sickness or an upset stomach, but in Ehlers-Danlos syndrome it can be linked to gut motility issues, dysautonomia, or mast cell activation. Not everyone with nausea has EDS, but if it comes with joint hypermobility, fragile skin, or chronic pain, it may be time to ask your doctor. Follow @doctorsoood to improve your health IQ and for similar content. VC: @unseenandbelieved #ehlersdanlossyndrome #EDS #medical
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LIFE WITH HYPERMOBILITY (in our case hypermobile Ehlers Danlos Syndrome) The following are just a few things that a geneticist or specialist may look at when evaluating someone for hypermobility and/or hypermobile EDS. Because this is a clinical diagnosis there is a lot of information that is gained in a physical examination and a thorough family and personal history. Having any one of these things, or even all of these things doesn’t necessarily mean you are hypermobile or have EDS. But when co
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