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March Remicade infusion day — come with me. Everything started normal. I checked in, got my arm band, got my blood pressure taken… and stepped on the scale. 316.2. Now listen… not exactly the number I want to see, but hey, at least it’s not back in the 320s. I’ll take the small wins where they come. Then I get to the infusion desk, set my little folder down, and they tell me neither one of my usual nurses are there. One doesn’t work there anymore, and the other one was off. I’m not gonna lie — I
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My belly button flare-up finally seems to be healing after this round of Remicade. 💙 The pain has been nonstop, but moments like this remind me that the medicine is working and healing is possible. #HidradenitisSuppurativa #ChronicIllnessJourney #InvisibleIllness #JustHowLifeGoes
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Biologic UPDATE!!! Im currently back on Remicade, or AVSOLA, which is the generic brand. Originally, i was on inflectra/inflixamab. Ask any questions, and ill as my doc for the answers i dont know 😂 #hidradenitissuppurativaawareness #hidradenitissuppurativa #hidradenitissuppurativawarrior #advocate
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